Actor portrayal of an older adult couple hugging watching their grandchild

In addition to the heart, the signs of transthyretin cardiac amyloidosis (ATTR-CM) can show up in other parts of the body

In fact, people may experience symptoms and conditions that seem unrelated to the heart.

These symptoms and conditions may include:

Illustration of a hand to note that bilateral carpal tunnel syndrome is common in people with ATTR-CM

Carpal tunnel syndrome

Illustration of the spine to depict that ATTR-CM is associated lumbar spinal stenosis, pain or numbness in the lower back or legs due to narrowing of the lower spine.

Lower back pain

Illustration of the stomach showing that ATTR-CM can cause gastrointestinal issues, such as diarrhea, constipation, nausea, or feeling full quickly

Stomach issues

Illustration of a foot with peripheral neuropathy which is a decreased or strange tingling sensation or pain in the toes and feet and can be associated with ATTR-CM

Strange tingling or pain in toes or feet

Tips if you’re newly diagnosed with ATTR-CM:

  • Understand that ATTR-CM is a rare, life-threatening, progressive heart condition, which means it will get worse over time
  • Discuss treatment options with your doctor as soon as your diagnosis is confirmed. The sooner you start treatment, the sooner you can begin to slow disease progression
  • It can be helpful to connect with other people diagnosed with ATTR-CM

Early diagnosis is important so that treatment can begin as soon as possible

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