Finding the support you need

Communities are available where you can learn more and exchange stories with others

For patients and caregivers, receiving an ATTR-CM diagnosis can be a confusing and stressful time. But you don’t have to go through it alone. Disease education and connecting with others who understand what you’re going through, via support groups, can help you overcome the uncertainty.

The Amyloidosis Support Groups provide information about ongoing ATTR-CM support and work to educate on and raise awareness of amyloidosis for all those affected by the disease.

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The Amyloidosis Research Consortium (ARC) offers comprehensive support and information for those living with amyloidosis throughout their journey. ARC aims to promote the development of and access to new and innovative treatments, and foster the research that will have the greatest impact on people living with the disease.

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The Amyloidosis Foundation works to drive research for an earlier diagnosis. The foundation also serves to educate medical professionals and assist patients through a broad range of services.

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