Having a plan to help manage ATTR-CM is key
Whether you’re diagnosed with wild-type or hereditary ATTR-CM, it’s important to remember:
ATTR-CM is a progressive condition (meaning it will get worse over time), so starting an appropriately prescribed treatment upon diagnosis can help manage the disease
a treatment option is available. Talk to your doctor to learn what he or she may prescribe to help manage ATTR-CM
If you are diagnosed with ATTR-CM, genetic testing and counseling is recommended to determine whether you have the wild type or hereditary form
Genetic testing and counseling:
helps confirm or rule out the hereditary form of ATTR-CM
determines whether family members may be affected, since the TTR gene mutation that causes hereditary ATTR-CM can be passed down
is usually performed using blood or saliva samples
Hereditary ATTR-CM can result from inheriting a gene mutation from a relative, so it’s important for patients diagnosed with hereditary ATTR-CM to encourage their relatives to seek genetic testing and counseling as recommended by their doctor.
Learn more about genetic testing and counseling, along with other resources available for people with hereditary ATTR-CM and their loved ones.